@article{2985237, title = "Developing patients' experiences database after hospital discharge: Another step in improving stroke care", author = "Konstantakopoulou, O. and Galanis, P. and Kaitelidou, D. and Karagkouni, I. and Korompoki, E. and Ntaios, G. and Vemmos, K. and Papastefanatos, S. and Papastefanatos, G. and Tsampalas, E. and Alexopoulou, H. and Kalliontzakis, I. and Kouridaki, A. and Tountopoulou, A. and Kouzi, I. and Milionis, H. and Evaggelou, C. and Karagkiozi, E. and Hatzitolios, A.I. and Savopoulos, C. and Myrou, A. and Mavraganis, G. and Vemmou, A. and Siskou, O.", journal = "Studies in Health Technology and Informatics", year = "2020", volume = "272", pages = "441-444", publisher = "IOS Press BV", doi = "10.3233/SHTI200590", keywords = "Decision making; Medical informatics, Acute stroke; Cross-sectional study; Data collection; Hospital discharge; Patient experiences; Policy makers; Social service; Stroke patients, Hospitals, adult; conference paper; controlled study; cross-sectional study; decision making; female; Greece; hospital discharge; hospitalization; human; major clinical study; male; multicenter study; questionnaire; retrospective study; social work; stroke patient; stroke unit; sun; cerebrovascular accident, Cross-Sectional Studies; Greece; Humans; Patient Discharge; Retrospective Studies; Stroke", abstract = "The aim of this study was to assess stroke patients' experiences in regards to hospital stay and during discharge. A cross-sectional study with retrospective data collection was conducted including patients (n=135) with first-ever acute stroke, who were admitted in seven Public Hospitals in Greece ('Stroke Units Necessity for Patients, SUN4P' registry). The translated version of the NHS-Stroke Questionnaire in the Greek was used. 48.2% of patients rated their overall experience from the care they received as very good/excellent. 66% of patients reported that they participated in decision making about their care and 21.5% reported not having received help from the hospital's social services regarding any benefits/aids, thus lowering their overall patient experience score (p=0.017). Decision and policymakers must consider factors affecting stroke patients experiences during their hospitalization. The development of a national stroke patients' experiences database can help prioritize relevant actions and draw up a commonly accepted management and services redesign framework for patients. © 2020 The authors and IOS Press." }