TY - JOUR TI - Developing patients' experiences database after hospital discharge: Another step in improving stroke care AU - Konstantakopoulou, O. AU - Galanis, P. AU - Kaitelidou, D. AU - Karagkouni, I. AU - Korompoki, E. AU - Ntaios, G. AU - Vemmos, K. AU - Papastefanatos, S. AU - Papastefanatos, G. AU - Tsampalas, E. AU - Alexopoulou, H. AU - Kalliontzakis, I. AU - Kouridaki, A. AU - Tountopoulou, A. AU - Kouzi, I. AU - Milionis, H. AU - Evaggelou, C. AU - Karagkiozi, E. AU - Hatzitolios, A.I. AU - Savopoulos, C. AU - Myrou, A. AU - Mavraganis, G. AU - Vemmou, A. AU - Siskou, O. JO - Studies in Health Technology and Informatics PY - 2020 VL - 272 TODO - null SP - 441-444 PB - IOS Press BV SN - null TODO - 10.3233/SHTI200590 TODO - Decision making; Medical informatics, Acute stroke; Cross-sectional study; Data collection; Hospital discharge; Patient experiences; Policy makers; Social service; Stroke patients, Hospitals, adult; conference paper; controlled study; cross-sectional study; decision making; female; Greece; hospital discharge; hospitalization; human; major clinical study; male; multicenter study; questionnaire; retrospective study; social work; stroke patient; stroke unit; sun; cerebrovascular accident, Cross-Sectional Studies; Greece; Humans; Patient Discharge; Retrospective Studies; Stroke TODO - The aim of this study was to assess stroke patients' experiences in regards to hospital stay and during discharge. A cross-sectional study with retrospective data collection was conducted including patients (n=135) with first-ever acute stroke, who were admitted in seven Public Hospitals in Greece ('Stroke Units Necessity for Patients, SUN4P' registry). The translated version of the NHS-Stroke Questionnaire in the Greek was used. 48.2% of patients rated their overall experience from the care they received as very good/excellent. 66% of patients reported that they participated in decision making about their care and 21.5% reported not having received help from the hospital's social services regarding any benefits/aids, thus lowering their overall patient experience score (p=0.017). Decision and policymakers must consider factors affecting stroke patients experiences during their hospitalization. The development of a national stroke patients' experiences database can help prioritize relevant actions and draw up a commonly accepted management and services redesign framework for patients. © 2020 The authors and IOS Press. ER -