TY - JOUR
TI - The Prevention of Thalassemia Revisited: A Historical and Ethical Perspective by the Thalassemia International Federation
AU - Angastiniotis, M.
AU - Petrou, M.
AU - Loukopoulos, D.
AU - Modell, B.
AU - Farmakis, D.
AU - Englezos, P.
AU - Eleftheriou, A.
JO - Hemoglobin:  Interrnational Journal for Hemoglobin Research
PY - 2021
VL - 45
TODO - 1
SP - 5-12
PB - Taylor and Francis Ltd.
SN - 0363-0269
TODO - 10.1080/03630269.2021.1872612
TODO - awareness;  genetic counseling;  health care organization;  health care system;  history;  human;  prenatal diagnosis;  public health;  Review;  sociology;  thalassemia;  China;  female;  genetics;  hemoglobinopathy;  pregnancy;  prevalence;  thalassemia, China;  Female;  Hemoglobinopathies;  Humans;  Pregnancy;  Prenatal Diagnosis;  Prevalence;  Thalassemia
TODO - Hemoglobinopathies are the most common monogenic disorders in humans; among them, thalassemia constitutes a serious medical and public health problem in high prevalence regions, in a geographical zone ranging from the Mediterranean Basin to China. In addition, migrations over the years have introduced thalassemia to many parts of the world. Although disease-specific programs are in place and accessible to most patients in prosperous countries, this is not the case in developing economies, where more than 75.0% of the patient population is born and lives; this concerns both prevention and treatment programs. In view of the significant improvements in public health and healthcare systems over the past few years, the Thalassemia International Federation has revisited the thalassemia prevention programs, initiatives and policies in some of its member countries, discussing their effectiveness and whether any changes in policy or public attitudes to thalassemia prevention have occurred through the recent years. © 2021 Informa UK Limited, trading as Taylor & Francis Group.
ER -