Unit:
Κατεύθυνση Πληροφορική της ΥγείαςLibrary of the School of Health Sciences
Supervisors info:
Ιωάννης Μαντάς, Καθηγητής, Τμήμα Νοσηλευτικής, ΕΚΠΑ, Επιβλέπων
Ιωσήφ Λιάσκος, Ε.ΔΙ.Π., Τμήμα Νοσηλευτικής, ΕΚΠΑ
Παρίσης Γάλλος, Ακαδημαϊκός Υπότροφος, Τμήμα Νοσηλευτικής, ΕΚΠΑ
Original Title:
Ανάπτυξη ιστοσελίδας για την εκπαίδευση και πληροφόρηση των φροντιστών για την Πλάγια Μυατροφική Σκλήρυνση (ALS)
Translated title:
Website development for caregivers education and information on Amyotrophic Lateral Sclerosis (ALS)
Summary:
Introduction: Amyotrophic Lateral Sclerosis (ALS) is the most common Motor Neuron Disorders (MND) and is a progressive neurodegenerative disease characterized by a rapid progressive paralysis and death within 2-5 years after the onset of symptoms. The ALS affects mostly people aged 55 to 75 years. The frequency is twice higher in men than in women.
The changing rate of progression of the disease makes it difficult to develop effective treatments. Therefore, the provision of Palliative Care (PC) in patients with ALS, in properly organized structures and services are of major importance for the supportive care of these patients and their families.
A tool giving information about ALS and PC services is technology, thanks to which anyone can have access anytime and anywhere.
Purpose: This dissertation aims to design, develop and implement a user-friendly and easy-to-use website that will provide information and training material to caregivers about the disease for improving the health care and quality of life of patients with ALS. In addition, this developing site will provide information and enable communication with the palliative care services of Galilee, such as the hospice or the home care. Galilee Palliative Care Center provides palliative care services to patients with ALS.
Methodology: The methodology for the creation of the website includes the analysis and identification of user requirements, according to the literature review, the design of the site’s structure, and the use of an open source content management system (CMS), in particular Wordpress to implement the website. The website will be assessed by caregivers of patients with ALS, with one of the most common methods of data collection in qualitative research, namely interviews.
Results: The results are the provision of easy, quick, reliable and accurate information and education about ALS and PC to caregivers in order to provide a higher quality of care to patients, till the end of their lives.
Main subject category:
Health Sciences
Keywords:
Amyotrophic Lateral Sclerosis, Palliative care, Content management system, Wordpress
