Ethical issues concerning the use of commercially available wearables in children: Informed consent, living in the spotlight, and the right to an open future

Επιστημονική δημοσίευση - Άρθρο Περιοδικού uoadl:3239346 176 Αναγνώσεις

Μονάδα:
Τμήμα Φιλοσοφίας
Τίτλος:
Ethical issues concerning the use of commercially available wearables in children: Informed consent, living in the spotlight, and the right to an open future
Γλώσσες Τεκμηρίου:
Αγγλικά
Περίληψη:
Wearable and mobile technology has advanced in leaps and bounds in the last decade with technological advances creating a role from enhancing healthy living to monitoring and treating disease. However, the discussion about the ethical use of such commercial technology in the community, especially in minors, is lacking behind. In this paper, we first summarize the major ethical concerns that arise from the usage of commercially available wearable technology in children, with a focus on smart watches, highlighting issues around the consent process, mitigation of risk and potential confidentiality and privacy issues, as well as the potential for therapeutic misconceptions when used without medical advice. Then through a relevant thought experiment we move on to outline some further ethical concerns that are connected to the use of wearables by minors, to wit the issue of informed consent in the case of minors, forcing them to live in the spotlight, and compromising their right to an open future. We conclude with the view that mitigating potential pitfalls and enhancing the benefits of wearable technology especially for minors requires brave and comprehensive moral debates.
Έτος δημοσίευσης:
2022
Συγγραφείς:
Andrie G. Panayiotou
Evangelos D. Protopapadakis
Περιοδικό:
JAHR
Εκδότης:
University of Rijeka, Faculty of Medicine
Τόμος:
13
Αριθμός / τεύχος:
1
Σελίδες:
9--22
Λέξεις-κλειδιά:
wearable devices, ethics, children, privacy, large data, informed consent, right to an open future, living in the spotlight
Κύρια θεματική κατηγορία:
Φιλοσοφία- Ψυχολογία
DOI:
10.21860/j.13.1.1
Αναφορές:
Ash, G. I., Stults-Kolehmainen, M., Busa, M., Gregory, R., Garber, C. E., Liu, J., Gerstein, M., Casajus, J. A., Gonzalez-Aguero, A., Constantinou, D., Geistlinger, M., Guppy, F., Pigozzi, F. & Pitsiladis, Y. P. (2020). Establishing a Global Standard for Wearable Devices in Sport and Fitness: Perspectives from the New England Chapter of the American College of Sports Medicine Members. Current Sports Medicine Reports, 19(2), 45-49. https://doi.org/10.1249/jsr.0000000000000680
Breslin, S., Shareck, M. & Fuller, D. (2019). Research Ethics for Mobile Sensing Device Use by Vulnerable Populations. Social Science & Medicine, 232, 50-57. https://doi.org/10.1016/j.socscimed.2019.04.035
Burrows, A., Coyle, D. & Gooberman-Hill, R. (2018). Privacy, Boundaries and Smart Homes for Health: An Ethnographic Study. Health & Place, 50, 112-118. https://doi.org/10.1016/j.healthplace.2018.01.006
Chang-Tek Tai, M. (2019). Children’s Autonomy in Medical Decision-Making. Jahr – European Journal of Bioethics, 10(1), 171-180.
de Montjoye, Y.- A., Hidalgo, C. A., Verleysen, M. & Blondel, V. D. (2013). Unique in the Crowd: The Privacy Bounds of Human Mobility. Scientific Reports, 3(1), 1376. https://doi.org/10.1038/srep01376
de Montjoye, Y.-A., Gambs, S., Blondel, V., Canright, G., de Cordes, N., Deletaille, S., Engø-Monsen, K., Garcia-Herranz, M., Kendall, J., Kerry, C., Krings, G., Letouzé, E., Luengo-Oroz, M., Oliver, N., Rocher, L., Rutherford, A., Smoreda, Z., Steele, J., Wetter, E., Pentland, A. & Bengtsson, L. (2018). On the Privacy-conscientious Use of Mobile Phone Data. Scientific Data, 5(1), 180286. https://doi.org/10.1038/sdata.2018.286
Desimpelaere, L., Hudders, L. & Van de Sompel, D. (2020). Children’s and Parents’ Perceptions of Online Commercial Data Practices: A Qualitative Study. Media and Communication, 8(4), 163-174. https://doi.org/10.17645/mac.v8i4.3232
Fawcett, E., Van Velthoven, M. H. & Meinert, E. (2020). Long-Term Weight Management Using Wearable Technology in Over-weight and Obese Adults: Systematic Review. JMIR mHealth uHealth, 8(3), e13461. https://doi.org/10.2196/13461
Feinberg, J. (1980). The Child’s Right to an Open Future. In William Aiken & Hugh LaFollette (Eds.), Whose Child? Children’s Rights, Parental Authority, and State Power (pp. 124-153). Totowa, NJ: Rowman and Littlefield.
Jo, A., Coronel, B. D., Coakes, C. E. & Mainous, A. G. (2019). Is There a Benefit to Patients Using Wearable Devices Such as Fitbit or Health Apps on Mobiles? A Systematic Review. The American Journal of Medicine, 132(12), 1394-1400.e1. https://doi.org/10.1016/j.amjmed.2019.06.018
Liao, T., Tanner, K. & MacDonald, E. F. (2020). Revealing Insights of User’s Perception: An Approach to Evaluate Wearable Products Based on Emotions. Design Science, 6, e14. https://doi.org/10.1017/dsj.2020.7
Mani, Z. & Chouk, I. (2017). Drivers of Consumers’ Resistance to Smart Products. Journal of Marketing Management, 33(1-2), 76-97. https://doi.org/10.1080/0267257X.2016.1245212
Martinez-Martin, N., Luo, Z., Kaushal, A., Adeli, E., Haque, A., Kelly, S., Wieten, S., Cho K. M., Magnus, D., Fei-Fei, L., Schulman, K. & Milstein, A. (2021). Ethical Issues in Using Ambient Intelligence in Health-care Settings. The Lancet Digital Health, 3(2), e115-1123. https://doi.org/10.1016/S2589-7500(20)30275-2
Muzny, M., Henriksen, A., Giordanengo, A., Muzik, J., Grøttland, A., Blixgård, H., Hartvigsen, G. & Årsand, E. (2020a). Dataset of Wearable Sensors with Possibilities for Data Exchange. Data in Brief, 28, 104978. https://doi.org/10.1016/j.dib.2019.104978
Muzny, M., Henriksen, A., Giordanengo, A., Muzik, J., Grøttland, A., Blixgård, H., Hartvigsen, G. & Årsand, E. (2020b). Wearable Sensors with Possibilities for Data Exchange: Analyzing Status and Needs of Different Actors in Mobile Health Monitoring Systems. International Journal of Medical Informatics, 133, 104017. https://doi.org/10.1016/j.ijmedinf.2019.104017
Obar, J. A. & Oeldorf-Hirsch, A. (2020). The Biggest Lie on the Internet: Ignoring the Privacy Policies and Terms of Service Policies of Social Networking Services. Information, Communication & Society, 23(1), 128-147. https://doi.org/10.1080/1369118X.2018.1486870
Pagoto, S. & Nebeker, C. (2019). How Scientists Can Take the Lead in Establishing Ethical Practices for Social Media Research. Journal of the American Medical Informatics Association, 26(4), 311-313. https://doi.org/10.1093/jamia/ocy174
Pasquale, L., Zippo, P., Curley, C., O’Neill, B. & Mongiello, M. (2020). Digital Age of Consent and Age Verification: Can They Protect Children? IEEE Software, 0-0. https://doi.org/10.1109/MS.2020.3044872
Perez AJ. & Zeadally S. (2018). “Privacy Issues and Solutions for Consumer Wearables,” IT Professional, 20(4), 46-56. doi: 10.1109/MITP.2017.265105905
Ploug, T. & Holm, S. (2013). Informed Consent and Routinisation. Journal of Medical Ethics, 39(4), 214-218. http://dx.doi.org/10.1136/medethics-2012-101056
Protopapadakis, E. D. (2019). From Dawn till Dusk: Bioethical Insights into the Beginning and the End of Life. Berlin: Logos Verlag.
Rauschnabel, P. A., He, J. & Ro, Y. K. (2018). Antecedents to the Adoption of Augmented Reality Smart Glasses: A Closer Look at Privacy Risks. Journal of Business Research, 92, 374-384. https://doi.org/10.1016/j.jbusres.2018.08.008
Ryan, J., Edney, S. & Maher, C. (2019). Anxious or Empowered? A Cross-sectional Study Exploring How Wearable Activity Trackers Make their Owners Feel. BMC Psychology, 7(1), art. 42. https://doi.org/10.1186/s40359-019-0315-y
Skovgaard, LL., Wadmann, S., Hoeyer, K. (2019). A review of attitudes towards the reuse of health data among people in the European Union: The primacy of purpose and the common good. Health Policy, 123(6), 564-571. 10.1016/j.healthpol.2019.03.012
Teipel, S., König, A., Hoey, J., Kaye, J., Krüger, F., Robillard, J. M., Kirste, T. & Babiloni, C. (2018). Use of Nonintrusive Sensor-based Information and Communication Technology for Real-world Evidence for Clinical Trials in Dementia. Alzheimer’s & Dementia, 14(9), 1216-1231. https://doi.org/10.1016/j.jalz.2018.05.003
Udesky, J. O., Boronow, K. E., Brown, P., Perovich, L. J. & Brody, J. G. (2020). Perceived Risks, Benefits, and Interest in Participating in Environmental Health Studies That Share Personal Exposure Data: A U.S. Survey of Prospective Participants. Journal of Empirical Research on Human Research Ethics, 15(5), 425-442. https://doi.org/10.1177/1556264620903595
Ulrich, C. M., Demiris, G., Kennedy, R. & Rothwell, E. (2020). The Ethics of Sensor Technology Use in Clinical Research. Nursing Outlook, 68(6), 720-726. https://doi.org/10.1016/j.outlook.2020.04.011
U.S. Department of Health & Human Services (2021, March 10). The HIPAA Privacy Rule. Washington D.C.: U.S. Department of Health & Human Services, https://www.hhs.gov/hipaa/for-professionals/privacy/index.html
Watson, K., Just, M. & Berg, T. (2021). An Investigation of Comic-Based Permission Requests. In Mikael Asplund & Simin Nadjm-Tehrani (Eds.), Secure IT Systems (pp. 246-261). Dordrecht: Springer.
Williams, M., Nurse, J. R. C. & Creese, S. (2019). Smartwatch Games: Encouraging Privacy-protective Behaviour in a Longitudinal Study. Computers in Human Behavior, 99, 38-54. https://doi.org/10.1016/j.chb.2019.04.026
Zhao, J., Freeman, B. & Li, M. (2016). Can Mobile Phone Apps Influence People’s Health Behavior Change? An Evidence Review. Journal of Medical Internet Research, 18(11), e287. https://doi.org/10.2196/jmir.5692
64. Andrie Panayiou & Evangelos Protopapadakis, Ethical issues concerning the use of wearables in children.pdf (107 KB) Άνοιγμα σε νέο παράθυρο