Περίληψη:
The published article [1] has two points of confusion in the section entitled "Technical challenges related to the management of electronic health records". Firstly, the International Rare Diseases Research Consortium (IRDiRC) has developed policies and guidelines on approaches to data sharing meant to enable and improve the development of diagnoses and therapies for rare diseases. However, at present, IRDiRC has not developed best practices for the management of electronic health records (EHRs). Secondly, RARE-Bestpractices is a European Commission 7th Framework Programme (FP7) funded initiative, independent of IRDiRC. RARE-Bestpractices contributes to IRDiRC goals and objectives; however the initiative itself is not sponsored nor connected to IRDiRC. © The Author(s). 2016.
Συγγραφείς:
Auffray, C.
Balling, R.
Barroso, I.
Bencze, L.
Benson, M.
Bergeron, J.
Bernal-Delgado, E.
Blomberg, N.
Bock, C.
Conesa, A.
Del Signore, S.
Delogne, C.
Devilee, P.
Di Meglio, A.
Eijkemans, M.
Flicek, P.
Graf, N.
Grimm, V.
Guchelaar, H.-J.
Guo, Y.-K.
Gut, I.G.
Hanbury, A.
Hanif, S.
Hilgers, R.-D.
Honrado
Hose, D.R.
Houwing-Duistermaat, J.
Hubbard, T.
Janacek, S.H.
Karanikas, H.
Kievits, T.
Kohler, M.
Kremer, A.
Lanfear, J.
Lengauer, T.
Maes, E.
Meert, T.
Müller, W.
Nickel, D.
Oledzki, P.
Pedersen, B.
Petkovic, M.
Pliakos, K.
Rattray, M.
i Màs, J.R.
Schneider, R.
Sengstag, T.
Serra-Picamal, X.
Spek, W.
Vaas, L.A.I.
van Batenburg, O.
Vandelaer, M.
Varnai, P.
Villoslada, P.
Vizcaíno, J.A.
Wubbe, J.P.M.
Zanetti, G.
