Τίτλος:
MelaNostrum: a consensus questionnaire of standardized epidemiologic and clinical variables for melanoma risk assessment by the melanostrum consortium
Γλώσσες Τεκμηρίου:
Αγγλικά
Περίληψη:
Background: Many melanoma observational studies have been carried out across different countries and geographic areas using heterogeneous assessments of epidemiologic risk factors and clinical variables. Aim: To develop a consensus questionnaire to standardize epidemiologic and clinical data collection for melanoma risk assessment. Methods: We used a stepwise strategy that included: compilation of variables from case–control datasets collected at various centres of the MelaNostrum Consortium; integration of variables from published case–control studies; consensus discussion of the collected items by MelaNostrum members; revision by independent experts; addition of online tools and image-based charts; questionnaire testing across centres and generation of a final draft. Results: We developed a core consensus questionnaire (MelanoQ) that includes four separate sections: A. general and demographic data; B. phenotypic and ultraviolet radiation exposure risk factors and lifestyle habits; C. clinical examination, medical and family history; and D. diagnostic data on melanoma (cases only). Accompanying online tools, informative tables, and image-based charts aid standardization. Different subsections of the questionnaire are designed for self-administration, patient interviews performed by a physician or study nurse, and data collection from medical records. Conclusions: The MelanoQ questionnaire is a useful tool for the collection and standardization of epidemiologic and clinical data across different studies, centres, cultures and languages. This will expedite ongoing efforts to compile high-quality data for pooled analyses or meta-analyses and offer a solid base for the design of clinical, epidemiologic and translational studies on melanoma. © 2018 European Academy of Dermatology and Venereology
Συγγραφείς:
Stratigos, A.J.
Fargnoli, M.C.
De Nicolo, A.
Peris, K.
Puig, S.
Soura, E.
Menin, C.
Calista, D.
Ghiorzo, P.
Mandala, M.
Massi, D.
Rodolfo, M.
Del Regno, L.
Stefanaki, I.
Gogas, H.
Bataille, V.
Tucker, M.A.
Whiteman, D.
Nagore, E.
Landi, M.T.
Περιοδικό:
Journal of the European Academy of Dermatology and Venereology
Εκδότης:
Wiley-Blackwell Publishing Ltd
Λέξεις-κλειδιά:
Article; clinical effectiveness; clinical examination; clinical feature; family history; follow up; human; lifestyle; melanoma; MelanoQ questionnaire; phenotype; priority journal; questionnaire; radiation exposure; risk assessment; risk factor; ultraviolet radiation; anamnesis; consensus; epidemiology; melanoma; procedures; risk assessment; skin tumor, Consensus; Epidemiologic Methods; Humans; Life Style; Medical History Taking; Melanoma; Radiation Exposure; Risk Assessment; Skin Neoplasms; Surveys and Questionnaires; Ultraviolet Rays
