Τίτλος:
Cancer patients' organisation participation in heath policy decision-making: A snapshot/cluster analysis of the EU-28 countries
Γλώσσες Τεκμηρίου:
Αγγλικά
Περίληψη:
Objectives Even though patient involvement in health policy decision-making is well documented, studies evaluating the degree and impact of this participation are scarce. This is even more conspicuous in the case of cancer. There is evidence showing that patients with the same type of cancer and at the same stage of the disease will receive different treatments in different countries. Therefore, it is crucial to assess the degree of patient participation in health policy decision-making across Europe, as it may result in health inequalities across countries. In a response to this research call, the present study aimed to provide a snapshot of cancer patients' organisation (CPO) participation in health policy processes in European Union (EU)-28 countries. Setting CPOs from the EU-28 countries. Participants Primary and secondary outcome measures: information about participants' sociodemographic characteristics and their involvement in their CPO was collected as well as data about the CPO. A 17-item index containing questions about the type and impact of participation in various facets of health policy decision-making was used to assess the degree of CPOs participation in health policy decision-making processes and its impact. © Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
Συγγραφείς:
Souliotis, K.
Peppou, L.-E.
Tzavara, C.
Agapidaki, E.
Varvaras, D.
Buonomo, O.
Debiais, D.
Hasurdjiev, S.
Sarkozy, F.
Περιοδικό:
BMJ Open Gastroenterology
Εκδότης:
BMJ Publishing Group
Λέξεις-κλειδιά:
adult; Article; Austria; Belgium; Bulgaria; cancer patient; cancer patient organization; cancer staging; cancer therapy; caregiver; cluster analysis; Croatia; Cyprus; Czech Republic; Denmark; Estonia; Europe; European Union; female; Finland; France; Germany; Greece; health care organization; health care policy; health care system; human; Hungary; Ireland; Italy; Latvia; Lithuania; Luxembourg; major clinical study; male; Malta; Netherlands; patient assessment; patient decision making; Poland; Portugal; reimbursement; Romania; self report; Slovakia; Slovenia; Spain; Sweden; United Kingdom; cross-sectional study; decision making; management; middle aged; neoplasm; patient participation; questionnaire, Cluster Analysis; Cross-Sectional Studies; Decision Making; European Union; Female; Health Policy; Humans; Male; Middle Aged; Neoplasms; Patient Participation; Policy Making; Surveys and Questionnaires
DOI:
10.1136/bmjopen-2017-018896
