Περίληψη:
Over 14000 patients aged 15-24 are estimated to be diagnosed with cancer
in the European Union (EU) each year. Teenagers and young adults (TYA)
often fall down gaps between children's and adults cancer services. The
specific challenges of providing optimal care to them are described, but
we present a summary of recent progress. Progress to overcome these
challenges is happening at different rates across Europe. We summarise
the European national projects in this field but more recently we have
seen the beginnings of European coordination. Within the EU 7th Funding
Programme (FP7) European Network for Cancer Research in Children and
Adolescents programme (ENCCA), a specific European Network for Teenagers
and Young Adults with Cancer has held a series of scientific meetings,
including professionals, patients and caregivers. This group has
proposed unanswered research questions and agreed key features of a
high-quality service that can improve outcomes for TYA with cancer,
including the primacy of collaboration between adult and paediatric
services to eliminate the gap in the management of TYA with cancer.
Συγγραφείς:
Stark, D.
Bielack, S.
Brugieres, L.
Dirksen, U.
Duarte,
X.
Dunn, S.
Erdelyi, D. J.
Grew, T.
Hjorth, L. and
Jazbec, J.
Kabickova, E.
Konsoulova, A.
Kowalczyk, J. R. and
Lassaletta, A.
Laurence, V.
Lewis, I.
Monrabal, A. and
Morgan, S.
Mountzios, G.
Olsen, P. R.
Renard, M.
Saeter,
G.
van der Graaf, W. T.
Ferrari, A.