Τίτλος:
The Greek version of the Juvenile Arthritis Multidimensional Assessment
Report (JAMAR)
Γλώσσες Τεκμηρίου:
Αγγλικά
Περίληψη:
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a
new parent/patient-reported outcome measure that enables a thorough
assessment of the disease status in children with juvenile idiopathic
arthritis (JIA). We report the results of the cross-cultural adaptation
and validation of the parent and patient versions of the JAMAR in the
Greek language. The reading comprehension of the questionnaire was
tested in 10 JIA parents and patients. Each participating centre was
asked to collect demographics, clinical data, and the JAMAR from 100
consecutive JIA patients or all consecutive patients seen in a 6-month
period and to administer the JAMAR to 100 healthy children and their
parents. The statistical validation phase explored descriptive
statistics and the psychometric issues of the JAMAR: the three Likert
assumptions, floor/ceiling effects, internal consistency, Cronbach’s
alpha, interscale correlations, test-retest reliability, and construct
validity (convergent and discriminant validity). The Greek JAMAR was
fully cross-culturally adapted with two forward and three backward
translations. A total of 272 JIA patients (5.9% systemic, 57.7%
oligoarticular, 21.3% RF negative poly-arthritis, 15.1% other
categories), and 100 healthy children were enrolled in all centres. The
JAMAR components discriminated well-healthy subjects from JIA patients;
notably, there was no significant difference between healthy subjects
and their affected peers in psychosocial quality of life and
school-related items. All JAMAR components revealed good psychometric
performances. In conclusion, the Greek version of the JAMAR is a valid
tool for the assessment of children with JIA and is suitable for use
both in routine clinical practice and in clinical research.
Συγγραφείς:
Pratsidou-Gertsi, Polyxeni
Trachana, Maria
Kanakoudi-Tsakalidou,
Florence
Tsitsami, Elena
Tsinti, Maria
Vougiouka, Olga and
Siamopoulou, Antigoni
Alfantaki, Sapfo
Stavrakidou, Maria and
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino and
Paediat Rheumatology Int Trials
Περιοδικό:
Rheumatology International
Εκδότης:
Springer Berlin Heidelberg
Λέξεις-κλειδιά:
Juvenile idiopathic arthritis; Disease status; Functional ability;
Health-related quality of life; JAMAR
DOI:
10.1007/s00296-018-3954-z
