Περίληψη:
Systemic lupus erythematosus (SLE) is the paradigm of systemic
autoimmune diseases characterised by a wide spectrum of clinical
manifestations with an unpredictable relapsing-remitting course. The aim
of the present work was to identify current available clinical practice
guidelines (CPGs) for SLE, to provide their review and to identify
physicians' and patients' unmet needs. Twenty-three original guidelines
published between 2004 and 2017 were identified. Many aspects of disease
management are covered, including global disease management, lupus
nephritis and neuropsychiatric involvement, management of pregnancies,
vaccinations and comorbidities monitoring. Unmet needs relate with
disease management of some clinical manifestations and adherence to
treatment. Many patient's unmet needs have been identified starting with
faster diagnosis, need for more therapeutic options, guidelines on
lifestyle issues, attention to quality of life and adequate education.
Συγγραφείς:
Tamirou, Farah
Arnaud, Laurent
Talarico, Rosaria
Scire,
Carlo Alberto
Alexander, Tobias
Amoura, Zahir
Avcin, Tadej
and Bortoluzzi, Alessandra
Cervera, Ricard
Conti, Fabrizio and
Cornet, Alain
Devilliers, Herve
Doria, Andrea
Frassi, Micol
and Fredi, Micaela
Govoni, Marcello
Houssiau, Frederic and
Llado, Ana
Macieira, Carla
Martin, Thierry
Massaro, Laura
and Moraes-Fontes, Maria Francisca
Pamfil, Cristina
Paolino,
Sabrina
Tani, Chiara
Tas, Sander W.
Tektonidou, Maria and
Tincani, Angela
Van Vollenhoven, Ronald F.
Bombardieri, Stefano
and Burmester, Gerd
Fonseca, Joao Eurico
Galetti, Ilaria and
Hachulla, Eric
Mueller-Ladner, Ulf
Schneider, Matthias and
Smith, Vanessa
Cutolo, Maurizio
Mosca, Marta and
Costedoat-Chalumeau, Nathalie
