Τίτλος:
PARENT joint action: Increasing the added value of patient registries in a cross-border setting
Γλώσσες Τεκμηρίου:
Αγγλικά
Περίληψη:
Patient registries are poorly interoperable and as a result data exchange or aggregation across organizations, regions and countries for secondary purposes (i.e. research and public health) is difficult to perform. PARENT Joint Action aims to provide EU Member States with a set of guidelines, recommendations and tools to support setting-up, management and governance of interoperable patient registries, thus helping EU Member States to drive down cost and interoperability risks of patient registries as well as improving secondary us-age of registry data in a cross-border setting. © 2013 IMIA and IOS Press.
Συγγραφείς:
Meglič, M.
Doupi, P.
Pristaš, I.
Skalkidis, Y.
Zaletel, M.
Orel, A.
Περιοδικό:
Studies in Health Technology and Informatics
Λέξεις-κλειδιά:
Digital storage; Electronic data interchange; Knowledge management; Public health; Semantics, Added values; Cross-border; Health information management; Joint actions; Patient Registries, International trade, electronic medical record; Europe; European Union; government; information dissemination; international cooperation; medical record; organization and management; practice guideline; procedures; register; standards, Electronic Health Records; Europe; European Union; Government Programs; Guidelines as Topic; Information Dissemination; International Cooperation; Medical Record Linkage; Registries
DOI:
10.3233/978-1-61499-289-9-1161
